About LebaChava
The struggles of living with an orphan muscular dystrophy..
*Please note that anything you give is a GIFT to pay for HBOT.
*Please also note, this page was created by me, Leba (my Hebrew name), for the sole purpose to help ppl who wish to send gifts so I can cover the weekly cost of my hyperbaric oxygen treatments. I am not a business. I do not nor ever have provided a product or service for any gifts received through this site. I have invoices for my weekly 90minute treatments.
I havent done many posts and posts are for the sole purpose of informing those who wish to help me be able to cover my hbot treatments, updates on my health which goes through many ups and downs.
I have unspecified muscular dystrophy. I have a Specialist/Neurologist who told me at my first visit that he may never be able to figure out the cause or give a specific name to my muscular dystrophy but he will always try.
Since 2020 to date, the only thing that helps me breathe w/out gasping is weekly hbot treatments. I explored ins coverage early on and learned that since the f d a only classifies approval for a small amount of conditions, and since nothing outside of those very limited conditions can get covered I have been left having to find the funds on my own.
I am told by some center owners that in the last yr or so, some Cadillac ins policies have started to agree to reimburse. When I asked about them I was told that those plans were so expensive that it would be unattainable for me and make no sense financially.
I am stuck in a very bad position as I am on my own, ill, not young, and cannot work like a normal healthy person. Muscular dystrophy is a disease that robs you of your energy. Acquiring it later in life was a shock to me as I thought it was only something kids got. Many children w/muscular dystrophy use electric mobility chairs to help them conserve energy. They get exhausted easily while still technically able to walk, bend etc.
I experience that daily. I often find myself falling asleep around 3pm and waking up 3-4 hrs later. I cannot fight the need to sleep.
On the days I go to hbot treatment, I drive 2 hrs a day plus the almost 2hrs in the machine. I get up early and get home late. I am wiped out.
I realize my situation is extreme and there are way too many scammers out there. Its hard to relate to my situation and I know this.
Once I lost my Mom three years ago Feb 2, 2022, I lost any emotional support and family I had. I no longer had a guaranteed roof over my head. I suddenly had to cover housing costs, utility costs, etc etc. And so I turned to social media and began begging.
So I use this site as a means to allow anyone from anywhere to be able to send me gifts to cover the hbot. Every penny goes to hbot. I keep nothing.
There is not nor ever has been any service or products given in exchange for your gifts received thru this site.
Since 2024 in my new area, my weekly hbot treatments are $300 (now) once a week. Despite what most ppl think, this is not nor ever will be covered by insurance. I wish it were.
Every “coffee” gift paysfor my necessary breathing treatments. (My Neuro & NP believe its the strong deep pressure that helps me get the o2. This can only be achieved in a hard hbot.)
ALL GIFTS MADE go directly and fully to cover hbot weekly.
Its not easy living alone w/a muscular disease that is progressive. I am tired a lot. I do what I must do and try to make trips on the short side to conserve energy.
I have lot rent to pay monthly, car ins increases (dont we all), I get food help from the local Christian food bank monthly (thank Gd.)
So please know when you gift a coffee the funds go immediately to the hbot center and cover for my breathing treatments (HBOT) .
I can barely cover my living expenses.
I am hoping with the new administration that maybe someone will craft legislation that will force all ins to cover hbot so long as your doctor prescribes it. It would end my need for this page and change my life. It would be one prayer answered.
I do not want to be dependent on begging for gifts to pay the hbot fees. It is a defeating existence and I just do not know how else to be able to pay the center.
Please understand that I am often exhausted and cannot always make posts to update on how I am feeling.
And I will do my best to keep everyone updated on my life.
*All gifts for hbot you choose to make through this site, are just that, gifts. I am not a non profit. I am not a business or service. I have never nor ever will offer any product or service in exchange.
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