I have always considered honesty and transparency in my life to be an eternal quality that will never leave me.

Therefore, I will tell my story as it is, as it is not a motivational or motivating story, but rather a story of difficult life and bitter reality. My name is Mohamad , and I live in Syria. I suffered from hemophilia as expected, as the disease was transmitted to me from my relatives through my mother, and my maternal uncles suffered from hemophilia. Suffering from hemophilia in my country, Syria, is a terrible suffering. I think it is different from other countries… When I want to tell you my story, I do not want to tell you a story of ambition, determination, or heroism, but rather of suffering, as my suffering was double… Since my birth, I have suffered from chronic diseases, that accompanied hemophilia, and the two most prominent diseases were nystagmus and disease of the adenoids and sinuses in relation to the disease. As for The first is a neurological disease that affects the eyes and neck, while the second was a simple disease that was easily treated by performing a simple operation, but unfortunately, because I suffer from hemophilia, which makes it impossible to undergo surgery, so its symptoms multiplied. This simple illness is for others, but is critical for me. It caused me enormous physical and psychological problems. Because of it, I was breathing through my mouth instead of my nose. This caused problems in the form of my teeth, fungi, cavities, and germs, which increased the rate of decay.… Of course, because I suffer from hemophilia, dental treatment is more and more difficult, as I must stay away from anything that causes bleeding or injury. It is more difficult with the lack of availability of factor VIII injections and with doctors’ ignorance of hemophilia…

These are diseases whose impact is simple for the average person, but because of hemophilia, these diseases have turned into a disaster.

As for the social aspect, the impact of the disease was terrible… educational institutions and facilities are not qualified to deal with patients and people with chronic illness. Neither in terms of infrastructure nor in terms of treatment by educational staff, employees, or even colleagues. They were not even trained to deal with students with chronic diseases. They were tragic institutions.

In terms of infrastructure or human resources, public school teachers in the three primary, middle and secondary levels did not treat patients with respect or any good treatment or positive discrimination. The teaching staff and staff in the schools did not all respect me or any patient, of course. I studied in public schools where the suffering is double, specifically with the lack of those responsible for the mental health and social guidance of students.

The matter did not stop only with regard to the administration, the educational staff, or even with regard to the infrastructure, as there were fifty students in one school class with a small space. Rather, the entire environment did not respect the weak or the sick, even by my colleagues in the same school and class... The school was like a forest. ...a ter experience.. and with the parents completely ignoring the necessity of changing my academic status and changing the school. I was constantly forced to go to school, like a prisoner who spent more than 12 years in Abu Ghraib or Guantanamo prison.

Going to school was a daily torture.

...

It lacked the simplest things, rights and dignity, and even everything was absent from her, and it lacked even the knowledge…

In terms of the impact of disease on social aspects... it is society’s treatment of the weak, specifically the sick, in a society where instinct prevails, not the logic of reason, and morals are contempt, contempt, and lack of respect. The weak and sick in my society are always marginalized.

If I want to propose to a girl or have a relationship with her, I must always avoid saying or disclosing my illness, because a chronic or disorder genetic of a child, teenager, or young man is a defect or a disgrace. Because of the rarity of the disease, not many people know what hemophilia is. It is more like an unknown disease. Among the social effects of the disease was the rude, disrespectful manner and harsh treatment I was subjected to from those around me without the slightest regard for dignity, good morals and positive discrimination. I was a victim of bullying at home or school, but at school it was worse and doubly so.

A rare and strange disease in relation to the world around me, and a poor infrastructure that even before 2011 was weak and almost dead. As for the health infrastructure, it was dead and collapsed even before 2011, to the point that I conducted several tests and blood analysis more than three times in order to know the clotting rate. The percentage was different every time. Factor VIII in the blood and the clotting rate. Until this moment, I do not know the exact blood clotting rate or the percentage of Factor VIII in the blood.

Whenever I was suffering from a disease, I had to explain to him what hemophilia was, that unknown disease. The suffering increased with dentists, as dental treatment required a lot of bleeding.

But there are two important events related to the extent of the doctors’ ignorance and the increase in my suffering due to their ignorance of hemophilia.

The first when I was infected with kidney stones , which caused bleeding in the kidney, which required injections of factor VIII, but the treatment was not available, which caused unlimited additional suffering, which prolonged the disease and treatment with plasma instead of factor VIII injections.

As for the second event, my teeth became infected , which required a tooth removal operation(apicoectomy indication) , but this is impossible because I suffer from hemophilia, as I cannot undergo operations due to hemophilia, and for this reason I did not undergo surgery on polyps and sinuses. All of this led to the exacerbation of diseases and problems.

Everything I mentioned left psychological effects, and those psychological effects left effects on my educational, scholarly, and professional career forever, and there is nothing more bitter and heartbreaking than paying the price of a fine or a tax for a mistake you did not commit.

Everything I mentioned about the effect of hemophilia is about the way my diseases multiply... a disease that leads to a disease... a disease that exacerbates the disease...

These circumstances and illnesses that I suffered from and which I mentioned previously, and the war that I witnessed and the devastation that my country witnessed and I am still witnessing to this day, have made me a person unlike others among my fellow students. These circumstances have made me a person inclined to contemplation and love of philosophy and history, and this it has an impact on me and on anyone who has the same circumstances and diseases. Diseases taught me patience and tolerance of hardship, and this has a positive impact. Contrary to what is expected, patience and contemplation are important for any person’s life, especially if he is a student in the College of Law. Diseases shaped me and refined my personality, making me incline to theoretical sciences and a lover of philosophy, history, and political science, which depend on contemplation, induction, and deduction. My circumstances And my diseases determined my passion, love, and hobbies. It defined my character, my future, and inspired my path towards life.

The Diseases have made me a wiser and more balanced person, far from recklessness and adolescence, and inclined to love study and science Devote yourself to reading cultural and scientific books and articles.

My illnesses made me focus on books as a result of my having to stay at home due to war conditions. War conditions made me more knowledgeable about rights and the knowledge of law.

The conditions of war that I experienced made studying difficult. I am not exaggerating if I tell you that some of the battles were close to my home, Some battles near my home have been affected more than others by the war, but even the home I live in has been bombed by artillery and mortar shells several times. The home I live in was not far from the battlefield, but rather in an area not far from it.

It is exciting, cruel, and has undesirable consequences All of this encouraged me to focus my studies at home instead of going to university a lot. This made me more in-depth, reading books, and understanding them more.

A devastating battlefield in which the most brutal battles took place, Even the university, a place of education and study for students, did not survive the ongoing war in Syria, making learning at this university an exciting adventure.

As a result of any person suffering from a chronic disease or a disorder genetic , it will inevitably make him learn new skills to adapt to live in peace, safety, and security with minimal losses, especially if he lives in a country from the third world is like my country, Syria, where the normal citizen does not enjoy basic rights, let alone patients with chronic diseases, where patients have fewer rights and are not respected by either the state or society.

These diseases had the opposite effect, making me more confident in my dreams and ambitions and more passionate about them. It is a challenge to myself, a challenge to my society, and to people who do not believe in the rights of patients and do not believe that these people should be subject to positive discrimination.

The opposite effect is like an incentive that always motivates me to try, regardless of the outcome, and to always strive for the best, and to defend the oppressed, the voiceless, the persecuted, and the forgotten. We want to remind the world of them, and to remind the world to give them the opportunity to try and prove their abilities in front of everyone, so that the world knows about them and the world learns about them. Because of their suffering, the world must hear our voices, especially those patients who suffer from a rare disorder genetic like mine, which is hemophilia. This disease, for me, is considered the pinnacle of diseases that are most harmful to my personal life.

I am hemophilic, A critical situation,

This disease requires people not to practice many types of sports, and the affected person suffers pain and becomes in a critical condition if the person bullies or practices violence towards him…

The person suffering from this disease is supposed to stay at home for as long as possible. What is most horrific and worst for a person suffering from hemophilia is to live in Syria, where people are less appreciative of the suffering of patients and more ignorant of it, and medicines and medicine are not available. The suffering will be double.

I as a person I do not know much if hemophilic patients in Britain, the United States, or in the European Union countries, in the First World countries, or in the Northern World, suffer a lot or suffer from what I suffer from, because they have democratic countries and free, independent media that highlight their suffering. They have platforms to express their suffering. They have democratic elections that change anything. If a government does not respond or provide the necessary care for them and they have universities that meet their ambitions, this was not available to me.

Because of saving time and effort by studying at home As for the conditions of my illness, I must repeat that diseases Give us new skills, new ways and methods, as a result of anyone suffering from a chronic disease and genetic disease that will Inevitably make him learn new skills to adapt to live calmly, safely and securely with minimal losses, Especially if he lives in a country in The third World is like my country Syria, where the ordinary citizen does not enjoy Basic rights, let alone patients with chronic diseases, where patients have less rights and are not respected, whether From the state or society These diseases had the opposite effect. I made more faith in my dreams and ambitions and more passionate about Them. It is a challenge to myself and a challenge to my community and to people who do not believe in the rights of Patients and do not believe that these should be subject to positive discrimination.

My confidence in my dreams and ambitions has increased and I have become more passionate about them.

My Baccalaureate mark was 95%. I excel in History and my Baccalaureate Mark was 86%. Hemophilia, which has greatly affected my academic career and my life. I also suffer from several chronic diseases, and the most prominent disease that negatively affected my life is an Eye disease called nystagmus, which unfortunately affected a lot in childhood and adolescence.

The person who will be proud of me is I . I don’t think I demand others to be proud of me. No one Can feel your success or failure but you. If your left hand feels cold, you will find only your right hand to Warm it. The criteria for success and failure and reasons for pride differ from person to person, most Importantly. For me to look at myself objectively and impartially and to evaluate it impartially and to be Satisfied with myself if I can achieve what I want without harming others?

The most difficult challenge I faced was the fierce war that took place in my country, where the battles Were next to my home, I had to study and graduate despite these difficult circumstances.

For more four years although I am A law Graduate in 2019 I would have to must to finish the training Period in 2021, but because of Hemophilia, The Bar Association did not accept me until 2021 Because my disease and Corona

I stayed more Two years Without work and without even Completing the training period, All Those tragic circumstances That I went through motivate me to study human rights , social Justice issues and Positive discrimination as one of the victims of negative Discrimination, Discrimination On the basis of disease. I was punished because of my disease and what Happened to me affected me a lot And made Me feel obligated towards Myself and towards People Who suffer similar sufferings. Despite the difficult circumstances, I had to study and graduate despite these difficult Circumstances.

The experiences and influences I have encountered, as mentioned earlier, have Shaped me into A unique individual Among my peers. These influences, particularly the diseases I have faced, Have taught Me the virtues of patience and Resilience in the face of adversity, which have had a Positive impact on my character.

All those tragic circumstances that I went through motivate me more to study human rights More, social justice issues and positive discrimination as one of the victims of negative Discrimination, Discrimination on the basis of disease.

I faced punishment due to my illness, and this experience greatly impacted me. It instilled a Sense of obligation towards both myself and those who endure similar hardships, fueling my Desire to study Master International Humanitarian Law and human rights Law, including its Subjects and laws.

My goal

I am seeking support to help me cope with the difficult circumstances of living with hemophilia in Syria, where access to proper treatment and Factor VIII is limited, and the daily challenges significantly affect my health and quality of life.

At the same time, this support will help me continue working toward my long-term goal of pursuing a Master’s degree in International Law and Political Science abroad, so I can deepen my knowledge of human rights and contribute to positive change in Syria.

Kaufe Mohamad einen Kaffee

A Syrian Lawyer. One Test. $100.

My Story