Thank you so much again for all your support and love. I am officially home was able to leave late late Friday! Which was great because I enjoyed my daughter's 4th birthday on Saturday. We just had family over and it was so nice to be able to celebrate with her.
The treatment went very well they were able to increase the doses each day. The infusions were given through my port and infused over 8 hours. So it takes awhile... lol then they checked blood to make sure my body isn't crashing and they monitor my vitals every hour when I'm infused then every couple hours after. So yes absolutely no sleep but the team was amazing!!
So now we just have to sit and wait until beginning September to see if my lung function stays same or increases which would be amazing!! But if it drops then we will have to do plan b.
In the mean time I'm getting blood work this week see how my labs are and I'm having port issues so I have to get that checked out. Hopefully nothing serious because I love my port and don't want to lose it.
Here is my latest video for everyone also!!